This is Carter, one of the happiest little boys you’ll ever meet! We found out Carter had PKU four days after he was born from the results of his newborn screening. Initially, it was a devastating feeling after going through pregnancy not knowing he had this, and not knowing a single thing about it. We had no idea what the future held or what life would look like, but we have found so many amazing resources to help us navigate our way through it, including the National PKU Alliance (NPKUA). We are still learning every day, but his infectious smile and cheerful personality reassures us that he is going to be just fine. When Carter was born in July of 2022, there was around 35 people in Alaska that had PKU. We have spoken to numerous people about PKU and it’s rare that anyone knows about it, which has encouraged us to create PKU Alaska. Our mission is to raise more awareness about PKU, and to raise money towards medical research and resources. We can’t thank everyone enough for the support of this and look forward to all that is to come! 

ABOUT PKU ALASKA